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Estimated to occur once in every 15,000 births, Prader-Willi Syndrome is a rare genetic disorder that includes features of cognitive disabilities, problem behaviors, and, most pervasively, chronic hunger that leads to dangerous overeating and its life-threatening consequences. Insatiable: A Prader-Willi Story draws on dozens of intensive interviews to offer insight into the world of Violet, a young girl with Prader-Willi Syndrome. For Violet, Prader-Willi Syndrome impacts everything from family and social relationships to education to her own self-image. But with the persistence of her parents and the help of experts, she will eventually discover not just how to live with Prader-Willi Syndrome-but how to live as Violet.
Autorius: | Debbie Frisk, Chelsea McCutchin, |
Leidėjas: | RTC Publishing |
Išleidimo metai: | 2014 |
Knygos puslapių skaičius: | 304 |
ISBN-10: | 1939418674 |
ISBN-13: | 9781939418678 |
Formatas: | 203 x 127 x 16 mm. Knyga minkštu viršeliu |
Kalba: | Anglų |
Parašykite atsiliepimą apie „Insatiable: A Prader-Willi Story“